Dysautonomia Sucks!!

Dysautonomia Sucks!!
This is a picture that I created just to show how I feel about my disease(s).

Friday, September 24, 2010

Judge Not Lest Ye Be Judged

There is nothing fun about being sick. No matter what you do or what meds you take you still feel bad. Everyone gets sick. I know this. Flu, Mono, Dysautonomia, etc. It doesnt matter what it is, everyone is still going to get sick. No one wants to be sick but its something we cant help no matter how hard we try. I got sick four years ago and we just thought it was something simple that was going around and that it would pass. Well it kept on and on and didnt go away. We went from doctor to doctor and tried medicine after medicine. Finally a doctor diagnosed me with Dysautonomia. We didnt know what it was. Whenever I got home I researched it and was in shock that I could have something like that. I had already been through a cancer scare. I didnt want to go through anything else. I felt so alone. No one knew what it was. Not even my doctors. I got on facebook one day and decided to search to see what (if any) dysautonomia stuff they had on there. And as I figured they didnt have much. So I decided to make me a page on facebook called "find a cure for dysautonomia". Within minutes I had many people joining and telling stories of how they suffer from it. It was so nice to find people who knew what I was going through. Of course I had my family and friends but its nice to know youre not alone in what youre going through and that someone else is dealing with the same thing. Which dont get me wrong. I'm not saying that I'm glad someone else is suffering. I hate it in fact but I know there is always someone there for me to talk to, ask questions, etc. I have my own support group on the computer with 24/7 support. Its great. And everyone knows that once you start going through something like that then you lose friends and sometimes even family. I know because it happened to me. I have even had someone tell me that since I was sick then I'm not a "Christian". I never knew that sickness had anything to do with religion. Its amazing how people judge. It hurts but then again it just shows you who was never a true friend to begin with. So to anyone who has ever loss a friend or family member because of health just remember "sometimes it takes someone leaving your life for someone better to enter it". I have so many things on my mind to talk about but its going to have to wait until tomorrow. I know I havent been posting alot but I'm not always able. I will post as much and as soon as I can.

4 comments:

  1. So true Kayla! I would have gone insane without the support I have receive over the internet. One of my "friends" that was actually being pretty hostile told me, that these people on the internet arent real friends, that they dont know me like she does. I had to laugh at that since she hadnt been there for me and just got done giving me a public criticism. I think some of my friends i have made on fb know me better for sure. Lots of late nite heart to hearts when you are suffering and sad will do that. Creates strong bonds even without ever meeting face to face. Sometimes we are lucky enough to meet! I cant wait to see you!!!! Love ya and hang in there!!

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  2. aww *big hugs* I didn't know u had a cancer scare! And there are so many people that say that most messed up things as to why they think you're sick. they just don't really listen! and you're right, you do learn who's worth it and who's not. which is sad, but I think good too, bc why waste another moment caring about someone who doesn't respect or properly care for you? have a nice day watching the game and relaxing!

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  3. Honey, life has become more bearable and livable with all of my support on the internet. I have been very lucky and had lots of people hang with me even though I complained too much. I have had the occational person tell me that I needed to shut up and that I was making it up, but the one thing that I had was the swelling that I get on the right side of my body and when my stomach would swell out and I had to wear maternity shirts. But it was still hard being the only person in the my world that was like this. It takes so much stress off of me to be able to read your problems and talk to you.

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  4. Its so nice to be able to relate to people who know what I'm going through. I've just learned to ignore the people who say things because that just shows that they are not strong enough to deal with the stuff that I deal with every day of my life. I just get so tired of hearing people say "Oh I dont judge people" but then they turn around and do exactly what they say they dont do. RudeKitiKatt: I'm glad you enjoy my blog. I know I dont post on here alot but I will eventually get the time to post more. Just stick with me please. I hope everyone is having a good day.

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